All Articles tagged qualitative research

• Genetic Disorders
  October 18, 2024 EDT
  Patient Experience of Living With Hemophilia A: A Conceptual Model of Humanistic and Symptomatic Experience in Adolescents, Adults, and Children
  Zalmai HakimiRakhee GhelaniLinda BystrickáNana KraghPatrick MarquisJameel NazirNadine McGale

  This aim of this qualitative study is to address the humanistic and symptomatic experience of patients living with hemophilia A and the impact of this condition on quality of life.

  Abstract
• Autoimmune Diseases
  August 18, 2023 EDT
  Development of a Conceptual Model to Understand Disease Burden in Patients With Systemic Lupus Erythematosus and Organ Damage
  Lynne BroderickWen-Hung ChenRoger A. LevyApril Mitchell FosterCindy Umanzor FigueroaKerry GairyDeven Chauhan

  We developed a comprehensive conceptual model describing the burden experienced by patients living with organ damage associated with systemic lupus erythematosus.

  Abstract
• Urological/Gynecological Diseases
  August 09, 2016 EDT
  Elicitation of Health-related Quality-of-life Concepts Associated with Overactive Bladder: A Qualitative Study
  Natalia HawkenZalmai HakimiSamuel AballéaJameel NazirIsaac A. O. OdeyemiMondher Toumi

  We performed a qualitative study to explore the impact of symptoms of OAB on affected patients and to develop a conceptual framework for OAB.

  Abstract