All Articles tagged humanistic burden

• Genetic Disorders
  October 18, 2024 EDT
  Patient Experience of Living With Hemophilia A: A Conceptual Model of Humanistic and Symptomatic Experience in Adolescents, Adults, and Children
  Zalmai HakimiRakhee GhelaniLinda BystrickáNana KraghPatrick MarquisJameel NazirNadine McGale

  This aim of this qualitative study is to address the humanistic and symptomatic experience of patients living with hemophilia A and the impact of this condition on quality of life.

  Abstract