Infantileb SMA Patients
(n=23)
Infantile Matched Non-SMA Patients
(n= 23)
Childhood Onsetc SMA Patients
(n=22)
Childhood Onset-Matched Non-SMA Patients
(n= 22)
Late Onsetd SMA Patients
(n=296)
Late Onset-Matched Non-SMA Patients
(n= 296)
Length of post-index follow-up (months), mean (SD), median 11.0 (± 9.58), 8.0 23.8 (± 18.50), 18.6 27.7 (± 23.37), 24.0 33.5 (± 32.04), 21.1 36.0 (± 26.50), 29.6 36.3 (± 29.81), 28.6
Inpatient hospitalizations
Patients with ≥1, % 91.3% 17.4% 50.0% 13.6% 37.2% 18.2%
Length of stay among patients with ≥1 inpatient hospitalization (days), mean (SD), median 40.8 (± 40.39), 19.6 13.7 (± 12.96), 12.8 14.9 (± 15.92), 6.0 0.7 (± 0.89), 0.3 9.1 (± 18.03), 2.1 3.4 (± 4.07), 1.5
Emergency department visits
Patients with ≥1, % 69.6% 21.7% 40.9% 22.7% 37.2% 25.8%
Outpatient office visits
Number per patient among all patients, mean (SD), median 24.0 (± 15.16), 18.5 6.8 (± 5.13), 5.6 15.2 (± 8.70), 12.9 5.6 (± 4.26), 5.9 11.8 (± 14.70), 8.5 5.8 (± 6.03), 3.9
Occupational/physical therapy-related visits
Patients with ≥1 visits, % 47.8% 4.3% 86.4% 4.5% 54.0% 25.5%
Home health visits
Patients with ≥1 visits, % 13.0% 0.0% 4.5% 0.0% 4.1% 1.2%
Durable medical equipment (wheelchair, walkers, etc)
Patients with ≥1 piece of equipment, % 13.0 % 0.0% 45.5% 0.0% 12.6% 0.6%
Pharmacy prescriptions
Number of prescriptions per patient among all patients, mean (SD), median 8.0 (± 8.20), 7.5 2.7 (± 4.59), 1.1 12.0 (± 12.27), 7.3 2.3 (± 3.20), 0.9 19.4 (± 18.11), 14.4 12.1 (± 15.82), 6.1